Our Programs
UTSS works to eliminate the discrimination and attacks against people with albinism through education and advocacy.

“Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. If people all over the world...would do this, it would change the earth.” -- William Faulkner

Advocacy & Public Awareness
The Advocacy and Public Awareness program educates people on the truths about albinism and fights for the inclusive human rights of people with albinism.
Be it educating a small community or speaking at the United Nations, UTSS always has the same message: People with albinism are just like everyone else with 2 simple differences: low vision and the lack of pigment (color) in their skin, hair and eyes. They deserve the same rights and opportunities as every person.

UTSS uses a variety of means to educate the public:

  • Understanding Albinism seminars in villages, universities, schools, hospitals, and more.
  • “The Truth About People with Albinism” leaflet distribution in rural areas.
  • National media presence: radio, TV, newspapers, magazines.
  • White and Black: Crimes of Colour documentary film screenings across Tanzania
See how raising awareness is bringing about change.
Margareth’s story
Margareth’s story

An abduction is thwarted by alert neighbours.

BMCC Church
BMCC Church

As friendships form, prejudices fall away

WHITE AND BLACK: Crimes of Colour
WHITE AND BLACK: Crimes of Colour

Behind the scenes of the screenings

You can help raise awareness about albinism in unreached places and save lives.
First Response Team
Following an attack on a person with albinism in Tanzania, UTSS arrives on site within 24-72 hours.
UTSS works with Tanzania's director of public prosecutions
Quick Action is Essential

We make sure survivors have adequate medical attention, counselling and a safe place to go.

If there has been a murder, we help with the funeral, and console the family.

We collect the facts related to the attack for legal action and to expose it to the media.

Information is provided to law enforcement, local government officials, international agencies and media.

We conduct Albinism Awareness Seminars right in the neighbourhood and community where the attack happened.

Baraka's Story
See the First Response team in action.

Little Baraka just lost his right hand to a vicious machete attack in his rural village home in Mbeya, Tanzania. Immediately the UTSS First Response Team springs into action, travelling to the site. Vicky Ntetema, Executive Director of Under The Same Sun Tanzania and leader of the team visits Baraka (6), his sister Lucia (3) and their mother Prisca at the hospital.

Vicky teaches Baraka’s mother Prisca about albinism, as the regional Secretary of the Tanzanian Albinism Society (standing) looks on. Prisca sustained head injuries while attempting to save her son during the attack. She has a total of 3 children with albinism.

Next the team visits the Kipeta Police Station in Baraka’s village. Vicky conducts an “Understanding Albinism” seminar for the police officers while three UTSS security personnel (standing by the vehicle) review the security risks in the area.

Enroute to Baraka’s house, the First Response Team encounters road challenges. This is a potentially dangerous situation for the team since they are coming to investigate the recent attack. Fortunately, villagers help to get the vehicle out of the sticky situation.

The team arrives at the house where Baraka was attacked as he was sleeping with his parents and siblings.

They gather evidence from the attack including photographing this mark on the ground. It was left by a machete strike when unidentified men pinned down and hacked off Baraka’s right hand.

Villagers in front of Baraka's house explain to Vicky Ntetema how the attack occurred..

Vicky interviews Baraka’s neighbours to get the facts regarding the attack. At the same time, the team takes the opportunity to give an albinism awareness seminar to the neighbours. It is hoped that next time something like this happens, the neighbours will recognise the danger and do more to help.

Meanwhile, back at the hospital Baraka is getting ready to leave for a safer place. He tries on new clothes given to him by the First Response Team. At the request of his mother, they’ll move him to a safe house and he will join the UTSS education program.

International Advocacy
UTSS is active at the United Nations, the African Union (AU), and in the international media to bring awareness and worldwide attention to the issue.
International Accomplishments
  • UTSS enjoys full NGO status at the United Nationas and makes regular presentations to U.N. committees.
  • The U.N. has issued 5 Human Rights Council Resolutions and the African Union has issued one, as a result of UTSS work.
  • International Albinism Awareness Day was named as June 13 by the U.N. in 2015
  • Since 2016, the U.N. has created the position of Independent Expert on Albinism
  • UTSS is the main source for publishing international data on human rights violations against persons with albinism. This data is used by the U.N., UNICEF and many others.
  • In 2015, UTSS hosted the 1st Pan-African Albinism Conference with 38 countries and over 200 delegates participating.
  • UTSS regularly receives international media coverage, and has sparked the making of many films, documentaries and books about the issues surrounding albinism in Africa.
2015 International Albinism Awareness Day Celebrations

Peter Ash interviewed in the halls of the U.N.

1st ever Pan-African Albinism Conference hosted by UTSS.

Adam’s story in the film “The Boy from Geita” brings international attention. Film available on iTunes.

You can help create awareness and advocate for people with albinism.

UTSS Latest News

June 13th, 2017
We are people too.
Read the Newsweek editorial written by UTSS Founder & CEO, Peter Ash, on his experience as a person with albinism and the persecution that PWA still face in many parts of the world.
May 05th, 2017
The Hunted
The New York Times reports on the deadly discrimination facing people with Albinism in Malawi and Mozambique.
April 12th, 2017
Tanzanian children with albinism seek care in US
Four Tanzanian children with albinism, who lost limbs in brutal superstition-driven attacks, arrived in the United States on Saturday for medical treatment and respite from a homeland where they are persecuted and feared.
April 12th, 2017
Global News
Four Tanzanian children with albinism who lost limbs in brutal superstition-driven attacks arrived in the United States on Saturday for medical treatment and respite from a homeland where they are persecuted and feared.
April 12th, 2017
Malawi police arrest 2 men found with the bones of a person with albinism
Police followed and arrested 2 men caught selling human bones near Crossroads Hotel in Lilongwe.
April 12th, 2017
Malawi attack survivor: 'I am too scared to sleep'
Femia Tchulani survived an attempted kidnapping in Malawi by people wanting to kill her for her body parts.
April 12th, 2017
Witch doctors in Malawi are hiring ‘hit men’
In Malawi, where the condition is more common than almost anywhere in the world, witch doctors hire ‘hit men’ from among the impoverished rural communities to murder then mutilate persons with albinism so they can use their organs for ‘medicines’ that are sold at huge prices.
April 12th, 2017
Persons with albinism in Zambia call for end to brutality
At least ten PWA are murdered in ritual killings every year in Zambia.
March 06th, 2017
Nyasa Times
Malawi Police have intensified their hunt for attackers who severely wounded two persons with albinism Friday.
March 03rd, 2017
Africa Times
An independent United Nations expert called Friday for stronger oversight of traditional medicine in African countries in order to limit the threat to people living with albinism.