Title: A Health Intervention Programme for Children with Albinism at a special school in South Africa
Subtitle:
Author(s):
Lund, Patricia, Gaigher, Retha
Date:
January, 2002
Pages:
8
Summary:
A self-report study of 38 students with albinism in South Africa. They are assessed for skin  and vision related challenges they face. A further assessment on their social adaptation is also included.  An examination of results leads to the suggestion that intervention in the lives of persons with albinism ought to be holistic (encompassing health and social aspects) as well as interactive.
Link:
Type:
Academic
Source:
Health Education Research, Vol. 17 No. 3, 365 - 372.
Keywords:
Albino; albinism; special school; education;  health; Siloe school; South Africa.
field_resource_pdf:
Title: A New Category of Color
Subtitle:
Analyzing Albinism Under Title VII and the Americans with Disabilities Act
Author(s):
Sara Scott
Date:
March, 2014
Pages:
31
Summary:
Link:
Type:
Academic
Source:
Keywords:
Title: Actinic Damage and Skin Cancer in albinos in northern Tanzania:
Subtitle:
findings in 164 patients enrolled in an outreach skin care programme
Author(s):
Lookingbill, D.P., Lookingbill, D.L., Leppard, B.
Date:
January, 1995
Pages:
6
Summary:
164 persons with albinism in rural northern Tanzania are examined for skin cancer among other things. Findings showed a very high incidence of pre-cancerous skin damage in patients.  Authors recommend that PWAs in this region remain indoors as much as possible and wear protective clothing.
Link:
Type:
Academic
Source:
Journal of the American Academy of Dermatology,  32, 653-658.
Keywords:
Albinism; Albino; Actinic Cheilities; Sun damage; Tanzania; Northern Tanzania
field_resource_pdf:
Title: Albinism and Skin Cancer in Southern Africa
Subtitle:
Author(s):
Kromberg, Jennifer G.R., Castle, David, Zwane, Esther M.
Date:
March, 1989
Pages:
10
Summary:
Research shows that skin cancer is found to be at an overall rate of 23.4% from a sample of  111 persons with albinism tested in Johannesburg, South Africa.  Recommendations are made for preventing skin cancer in persons with albinism.
Link:
Type:
Academic
Source:
Clinical Genetics 1989: 36: 43 - 52.
Keywords:
Albino; Albinism; Skin cancer; South Africa; Johannesburg.
field_resource_pdf:
Title: Albinism and The Contingencies of Stigma
Subtitle:
Author(s):
McLeod, Thomas
Date:
April, 2010
Pages:
45
Summary:
A medico-anthropological perspective on albinism in sub Saharan Africa. Analyzes stigma and processes of stigmatization against persons with albinism in certain countries of sub Saharan Africa. Focuses on Cameroon and Tanzania.  Examples also from Nigeria, Malawi, Congo, Burkina Faso and Zimbabwe.
Link:
Type:
Academic
Source:
Dissertation (unpublished) University College of London
Keywords:
Albinism; Africa; Stigma; Stigmatization
Title: Albinism in Malawi:
Subtitle:
Knowledge and beliefs from an African setting
Author(s):
Braathen, Stine H., Ingstad, Benedicte
Date:
September, 2006
Pages:
13
Summary:
On  knowledge. beliefs and attitudes towards persons with albinism in Malawi.
Link:
Type:
Academic
Source:
University of Oslo, Norway, and SINTEF Health Research, Norway. In Disability & Society, Vol. 21, No. 6, October 2006, pp. 599 - 611.
Keywords:
Albino; Albinism; Quality of life; Africa; Malawi; Stigma; Discrimination; Myth; Beliefs; Disability; Sunscreen; Visual aids.
field_resource_pdf:
Title: Albinism in Negro Children
Subtitle:
Author(s):
Beckham, Albert S.
Date:
January, 1946
Pages:
17
Summary:
42 subjects who are persons with albinism - 14 boys and 28 girls - are interviewed over a 10 year period. The extent to which the physical appearance of the subjects affects their social and individual attitude is assessed.  A comparative study on Intelligence levels of the subjects versus the levels of their non-albino siblings is also presented.
Link:
Type:
Academic
Source:
Journal of Genetic Psychology, 1946, 69, 199 - 215.
Keywords:
Albinism; Negro; Black; African.
field_resource_pdf:
Title: Albinism in Nigeria with Delineation of New Recessive Oculocutaenous Types
Subtitle:
Author(s):
King, Richard A., Creel, D., Carvenka J. et. al.
Date:
March, 2017
Pages:
12
Summary:
79 persons with oculocutaenous albinism in Nigeria are examined. Of the 79, 53 have  tyrosinase positive albinism, 23 had "brown albinism."  Brown albinism is described as a new ocolocutaenous type and is characterized as having light brown skin, light brown hair, blue to brown eyes. Studies on albinism by Dr. Okoro of the Univeristy of Nigeria  in 1975 are further expantiated  in this study. Albinism was found to occur as frequently as 1 in every 1,500 in the city of Lagos.
Link:
Type:
Academic
Source:
Clinical Genetics, 1980: 17: 259-270.
Keywords:
Albinism; Albino; Brown albinism; Oculoutaenous Albinism; Tyrosinase-positive.
field_resource_pdf:
Title: Albinism in Nigeria:
Subtitle:
A Clinical and Social Study
Author(s):
Okoro, A.N.
Date:
March, 2017
Pages:
8
Summary:
Albinism in Nigeria is more common in the southern parts of the country.  The reason for this is attributed to inbreeding among members of thesame clan or townships. Persons with albinism face hostility both from the society and from the sun. 1,000 persons with albinism in Nigeria are studied here which showed that no person with albinism over 20 years of age in this group was without malignant or pre-malignant skin lesions.
Link:
Type:
Academic
Source:
British Journal of Dermatology, (1975) 92, 485.
Keywords:
Albino; Albinism; Nigeria; Occurrence; Skin Cancer; Health; Social relations; Education.
field_resource_pdf:
Title: Albinism in the South African Negro
Subtitle:
III. Genetic Counselling Issues
Author(s):
Jenkins, Trefor, Kromberg, Jennifer
Date:
May, 1984
Pages:
10
Summary:
35 albino South African subjects are comparatively analyzed with a corresponding number of non-albino South Africans. Subjects are assessed for adjustment to albinism as well as attitudes of non-albinos to persons with albinism. Authors discover that little is known about albinism as a genetic condition and conclude that public education is needed in this regard both for persons with albinism and for the society at large. Issues that might be taken into account when counselling a person with albinism are also discussed.
Link:
Type:
Academic
Source:
Journal of Biosocial Science  (1984), 16: 99 - 108
Keywords:
Albino; Albinism; Myth; Education; South Africa; Counselling; Attitude Adjustment
field_resource_pdf:

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